Managing Neck Muscle Weakness
Some people with ALS develop muscle weakness of the
neck. This may cause limited mobility of the head. Turning the head
from side to side or holding the head upright may be difficult, as the
neck supports the head that weighs about 20 pounds. Limited head
movement can contribute to a stiff neck, a poor head posture, and
severe pain if these problems are not managed. In fact, neck muscle
weakness can lead to a vicious cycle of limited head mobility and a
stiff neck (resulting in pain and impairing head mobility ever
further), causing more pain with emotional distress. Emotional stress
can also compound muscle tightness and cause pain. People with neck
muscle weakness are vulnerable to injury. If the head suddenly flops
backward, forward, or sideways, this can cause muscles and ligaments in
the neck to tear. It can also cause serious injury to the cervical
spinal cord or vertebrae in the neck. Such injuries may be a result of
"overstretching" due to a sudden excessive force that propels the neck
forward, backward, or to one side or another. Hyperextension(backward)
or hyperflexion (forward bending) injuries may be referred to as a
"whiplash." This can occur, for example, when a person is transferring
in or out of abed or a chair and the neck is jarred. For some people,
even a slight jerk of the head can cause a torn muscle in a weak neck.
Injuries to the neck can be very painful, especially when turning the
head, raising and lowering into bed and rolling over when in a lying
position. Besides causing pain and injury to the neck, poor head
posture can aggravate breathing, swallowing and communication. Through
effective management of neck muscle weakness, complications of pain and
injury can be prevented or treated. Finding the best methods for
supporting the head in an upright position to protect against injury is
essential. Strategies for improving the head posture and promoting head / neck mobility, comfort and safety include:
1. Achieve and maintain a good body alignment when sitting to promote an upright head position.Use
of a cushion, pillow, or rolled towel behind the lumbar region of the
low back not only helps to align a slumped posture, but will help keep
the head and shoulders from slouching forward. If sitting in a high
back chair, placing a rolled towel behind the neck also improves the
head posture and helps prevent or alleviate discomfort in the neck.
Placing a pillow under each arm or on top of each armrest of the chair
helps promote an upright head position, and provides maximum comfort
when sitting for a long time. Proper alignment of the head, neck, and
body allows the lungs to expand for better breathing. 2.
Wearing a soft collar or a neck brace, called a cervical collar, is an
effective method of holding up the head if this is difficult.A
collar supports the head when the person is walking or being
transferred from one sitting position to another. To protect against
injury from sudden motion, people with advanced neck weakness should
wear a collar when they are moving or being transferred from one seat
to another, when walking, or riding in the car. Use of a collar
to hold up the head when walking permits a better sight line and may
reduce the risk of falling. 3. Identify and use the appropriate cervical collar(s) that will best meet your needs.Most
people with neck weakness are unable to tolerate wearing a collar all
the time, especially one that can lead to skin breakdown and
discomfort. A variety of comfortable collars are available. One of the
most common is a soft foam collar. Although non-rigid collars provide
comfort, they offer minimal support if neck weakness is advanced. One
popular lightweight collar is the Headmaster Collar™ (Symmetric Designs
Ltd., Salt Spring Island, BC). It is a low profile cervical collar with
a padded chin rest. The padded tubular design feels cool and
comfortable, even in warm weather, and does not constrict the neck.
Another collar to consider is the Aspen Cervical Collar™ (Long Beach,
CA). It offers good neck support with a breathable type of foam and is
found to be comfortable by a number of collar wearers. Cervical collars
can be obtained at most medical suppliers, and the cost is usually
covered by health insurance if ordered by the physician. 5.
To promote comfortable use of head support, alternating the use among
several collars may be a solution to reducing pressure points on the
skin of long-term collar wearers.Perhaps the
Headmaster Collar™ might be used as a supplementary collar to relieve
pressure points. In addition, a thin-cushioned skin dressing, such as
Duoderm® (ConvaTec, Princeton, NJ), can be applied over pressure areas
to protect against skin breakdown. In some countries, Duoderm is
referred as Granuflex® or Varihesive®. 6. Laying back in a reclining chair is another method to support the head and to help keep the head from falling forward.
This
may include a reclining wheelchair with a high back or one in which a
headrest can be attached. Power lift chairs also recline, and with a
push of a button they can recline back exactly to the desired angle.
People with excessive oral secretions might have difficulty reclining
backward. To help prevent choking on oral secretions, the head can be
positioned to the side and propped with a pillow. 6.
Using a head support system can position the head in an upright
position by a band across the forehead that attaches to an adjustable
headrest that mounts to a chair.Some head support systems include the use of an elastic band, such as the Dynamic Forehead
Strap System (Whitmyer Biomechanix, Inc., Tallahassee, FL) that moves
with the user for a greater degree of movement and comfort than is
provided by conventional bands. Head support systems usually can be
obtained from a medical supplier who specializes in wheelchair
accessories. People who need maximum support in holding up the head and
who cannot tolerate long term use of a cervical collar might benefit
from intermittent use of a head support system. 7. When in bed, avoid sleeping on a pillow that is too high. This
will not only strain the neck, but may cause wakefulness at night. A
rolled towel placed underneath the back of the neck with the head
resting on a low pillow can provide support and comfort of the neck and
head when sleeping. In addition, people who have trouble keeping their
head upright might try lying in bed a few times during the day to
relieve the neck muscles. 8. Stretching exercises of the
neck muscles can help promote mobility of the head, alleviate stiffness
of the neck, and help prevent and treat neck pain. Two exercises can be
done safely:1. Slowly turn your head to the right as far as possible, hold, and return to the center. Do the same to the left. 2.
Tilt your head straight over towards the right ear, hold, and return it
to the center. Do the same on the left side. To avoid injury,
evaluation and training of other exercises by a physical therapist or a
visiting nurse may be warranted. 9. People who have
unresolved neck pain or difficulty holding up their head should consult
with their physician who may prescribe physical therapy for treating
their problems.A physical therapist is specially
trained to evaluate the neck, help relieve neck pain, make
recommendations for supporting the neck and head, and provide education
on reducing the risk of neck injuries. Some methods of treatment may
include the use of moist heat, massage and exercises that stretch the
neck to alleviate stiffness and to enhance mobility and comfort. Life
should not have to be a "pain in the neck." © 2000 Pamela A. Cazzolli, RN, Canton, Ohio USA. All Rights Reserved. www.ALSSupportNetwork.org |